busybee: fluffy rambles: life going on https://beesbuzz.biz/blog/11322-life-going-on #MentalHealth #ChronicPain #Furality #Gaming #Music #Choir #Blog

life going on

https://fed.brid.gy/r/https://beesbuzz.biz/blog/11322-life-going-on

Really sad that the nurse taking my vitals today did not have a sense of humor. I really feel like if someone asks you to rate your pain, saying “Zero out of five stars, would not recommend” is at least worth a slight chuckle.

Living with chronic pain means exercise is challenging, even scary.

Movement without a nervous system meltdown is rare.

My e-bike helps provide this.

My body senses that there's been exercise, but less perceived danger, so less likelihood of triggering a flare-up.

The awe, wonder or wow factor helps parasympathetic nervous system recharging. And it's fun.

To those who suggest that using an e-bike is just lazy..
May you never suffer #chronicpain and be as lazy as you think we are.

#ChronicIllness #ChronicPain folx: have you either created or purchased a clothing storage solution that doesn’t require much bending over?

There were floor-to-ceiling shelves in the little closet where I last lived, and it was so nice not to bend over too much to obtain the daily necessities. Kept the least needed items closer to floor level. Just pulled out a plastic bin to get what was needed. Can't build-out much in a rental, but would love ideas if you have 'em. Thanks!

My body is pissed with me for some reason. I'm still on the edge of an IBS flareup, had a visual migraine last night, badly hurt my frozen shoulder twice yesterday, and am on day two of a low grade headache. I hoped to start running today, but my body says no. I hope I can get some writing done today, but not sure my brain is up to it due to migraine hangover. #ChronicPain #ChronicIllness

Second day this week that I’ve woken up before my alarm in awful pain. I think it’s more weather related than anything, but it’s super frustrating.
#ChronicPain #NEISVoid

I was afraid to read this because I’m really sick of the stigma of chronic pain.

I got one of those “did you know there are other treatments for pain besides opioids” letters from medicare yesterday. Seems like a tolling attempt when the stuff they list (like massage and acupuncture) aren’t usually covered by Medicare. None of us can afford regular out of pocket massage.

This is a regular thing that they send, but the terrifying difference is that this letter had a paragraph about how part D plans can change the formulary at any time throughout the year.

I think they’re warning me that they’re going to stop covering pain medication for chronic pain. And the timing of this article being sent out again makes me even more suspicious.

“Editorial
February 17, 2025
Integrating Buprenorphine Into Chronic Pain Treatment—Putting the Choice in VOICE”
https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2830025

From Canada:

The gut microbiota promotes pain in fibromyalgia

https://www.cell.com/neuron/fulltext/S0896-6273(25)00252-1

"Transplanting gut microbiota from women with fibromyalgia into mice induces pain. It also induces immune activation, metabolomic changes, and reduced skin innervation"

@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #ChronicPain

"'Twirl With Me, Mama!' by Melissa Beardall & Rebecca Nichols is a moving children’s book that shines a compassionate light on families living with #chronicillness ."

https://hazymaybooks.com/about-the-book/

See next post for more information on this book

@chronicillness
@spoonies #parenting #chroniclife #ChronicPain #Spoonielife
#hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
#ChronicallyIll @mecfs
#MEcfs @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots

1/

I have just woken up from eighteen blissful hours of #sleep partly thanks to delta 8. I feel actually rested, which is quite a rarity for folx with #mecfs #chronicillness #chronicpain #disability #non24hoursleepwakedisorder :blink: I'm sure I haven't missed anything important. My dreams were repetitive, and sort of anxious, but well within tolerance.

Today is the 1st of May, which means it's the start of Ehlers Danlos Syndrome and Hypermobile Spectrum Disorder Awareness Month!

Hello and solidarity to all of my zebra siblings

Do any of my fellow Autistic neurokin experience and respond to pain differently to others?

https://www.davidgrayhammond.co.uk/p/how-my-autistic-experience-of-pain

#ActuallyAutistic #autism #ChronicPain #Healthcare @actuallyautistic @autisticadvocacy.a.gup.pe

I don't get imposter syndrome about my skills. I get imposter syndrome about being disabled. But when it comes to applying for grants/scholarships available to people with disabilities, listing the various shit wrong with me and the struggles I have overcoming them brings it home.

It's my internalized ableism that makes me think I'm a temporarily-inconvenienced able-bodied person. I have more bad days than good now, and that's something I've got to take to heart. I'm disabled.
#ChronicPain #ChronicIllness #Disability #ImposterSyndrome

The whiplash of going from several good pain days and the imposter syndrome that comes with it…
To a day where everything hurts so bad I can barely walk. Ugh.
#NEISvoid #hypermobility #ChronicPain

Here's an introduction for my new instance:

So here's a quick #introduction - I'm a python and java developer who used to work mainly on open source #geospatial software such as #geoserver.

Currently, I am a research software engineer at Glasgow University. My contract ends in October 2025 so I am looking for work. #fediHire

In my spare time I help out at a #repairCafe fixing broken electrical items. I
'm also a full time #carer and struggle with #depression and #chronicPain.