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#chronicallyill

5 posts4 participants0 posts today
Arend (they) 🏳️‍⚧️🍉<p>Ableism in political organizing looks like people telling others they're not doing enough. It looks like influencers suggesting you push through your tiredness. It looks like organizers burning out. These messages exclude disabled folks who would like to help. I've held the line 5-feet from cops in riot gear, helped shut down freeways, sat-in at my local congressperson's office. Others are not so able. But everyone shoulds on you when you're <a href="https://musicians.today/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a>.</p>
Arend (they) 🏳️‍⚧️🍉<p>I once got invited to join a steering committee for local anti-war organizing, brought up my concerns about my limited availability due to my disability, and received the response that I more or less shouldn't join because of the hefty time commitment. Then I got a sarcastic welcome back when I was feeling well-enough to get out on the streets again. Everybody shoulds on you when you're <a href="https://musicians.today/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a>.</p>
Tom Kindlon<p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>spoonies</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <br><a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chroniclife</span></a> <br><a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicPain</span></a> <br><a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Spoonielife</span></a> <br><a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>hiddenillness</span></a> <br><a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>invisibleillness</span></a> <br><a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllnesses</span></a> <br><a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Spoonies</span></a><br><a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Spoonie</span></a><br><a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a><br><a href="https://disabled.social/tags/ChronicIllnessMemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllnessMemes</span></a></p>
Bun (he/they)<p>Please boost this <a href="https://disabled.social/tags/MutualAidRequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAidRequest</span></a> for Lydia, an autistic trans woman with EDS. She was already struggling to pay the bills, and now her rent is going up significantly. She needs help affording August rent. Please boost!</p><p>$0/400</p><p>venmo and paypal are both: @lydiawilder0</p><p>Small donations add up. This is now an emergency!</p><p><a href="https://disabled.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://disabled.social/tags/DisabledAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledAid</span></a> <a href="https://disabled.social/tags/TransMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>TransMutualAid</span></a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a> <a href="https://disabled.social/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EDS</span></a></p>
Bun (he/they)<p>updated needs and mutual aid goal for Xander, who is trans, chronically ill, and unemployed but interviewing for jobs, and could really use $130 to help pay a couple credit card bills, and $50 to pay for student loans. +$20 for transportation!</p><p>$0/200</p><p>venmo: xan1120<br>cashapp: Xan1120</p><p>Please boost! Even $1 helps.</p><p><a href="https://disabled.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a></p>
Bun (he/they)<p><a href="https://disabled.social/tags/MutualAidRequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAidRequest</span></a> for Lydia, an autistic trans woman who suffers from chronic EDS. She was already struggling to pay the bills, and now her rent is going up significantly. She needs help affording August rent. Please boost!</p><p>$0/400 (as of 7/21)</p><p>venmo and paypal are both: @lydiawilder0</p><p>Any amount helps! If you can only boost that is okay, you never know who may see this and be able to donate. 💖</p><p><a href="https://disabled.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://disabled.social/tags/DisabledMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledMutualAid</span></a> <a href="https://disabled.social/tags/DisabledAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledAid</span></a> <a href="https://disabled.social/tags/TransMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>TransMutualAid</span></a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a> <a href="https://disabled.social/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EDS</span></a></p>
Elise (they/ them)🇦🇺🏳️‍🌈<p><a href="https://wandering.shop/tags/Writers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Writers</span></a> and <a href="https://wandering.shop/tags/Authors" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Authors</span></a>, I love how my <a href="https://wandering.shop/tags/writing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>writing</span></a>, <a href="https://wandering.shop/tags/querying" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>querying</span></a> and <a href="https://wandering.shop/tags/IndieAuthor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>IndieAuthor</span></a> discord is shaping up. We have plenty of SFF, <a href="https://wandering.shop/tags/LGBTQIA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LGBTQIA</span></a>+, <a href="https://wandering.shop/tags/neurodiverse" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>neurodiverse</span></a> and quite a few <a href="https://wandering.shop/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a> and <a href="https://wandering.shop/tags/disabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabled</span></a> writers and authors.<br> <br>But I'd love to see more writers from my neck of the woods, and <a href="https://wandering.shop/tags/BIPOC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BIPOC</span></a> writers from anywhere in the world (I'm also hoping to find a BIPOC co-admin).</p><p>So let me know if you'd like an invite, especially if you're an Aussie/ Kiwi/ Islander, Asian (or based in Asia) or BIPOC writer!</p>
Elise (they/ them)🇦🇺🏳️‍🌈<p>If anyone's interested in a <a href="https://wandering.shop/tags/Writers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Writers</span></a> &amp; <a href="https://wandering.shop/tags/Authors" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Authors</span></a> Discord...</p><p>Mine is one big community when it comes to <a href="https://wandering.shop/tags/writing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>writing</span></a>, <a href="https://wandering.shop/tags/querying" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>querying</span></a> and being an <a href="https://wandering.shop/tags/IndieAuthor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>IndieAuthor</span></a>.<br>Within that, we've got channels to help the following writers/ people connect;</p><p>GENRE<br><a href="https://wandering.shop/tags/SciFi" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SciFi</span></a>, <a href="https://wandering.shop/tags/Fantasy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Fantasy</span></a>, <a href="https://wandering.shop/tags/SpecFic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SpecFic</span></a> &amp;<a href="https://wandering.shop/tags/WorldBuilding" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WorldBuilding</span></a><br><a href="https://wandering.shop/tags/Mystery" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Mystery</span></a>/ <a href="https://wandering.shop/tags/Thriller" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Thriller</span></a>/ <a href="https://wandering.shop/tags/Crime" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Crime</span></a><br><a href="https://wandering.shop/tags/Romance" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Romance</span></a><br><a href="https://wandering.shop/tags/Horror" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Horror</span></a><br><a href="https://wandering.shop/tags/Kidlit" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Kidlit</span></a></p><p>AUTHORS<br><a href="https://wandering.shop/tags/Queer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Queer</span></a><br><a href="https://wandering.shop/tags/Neurodivergent" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neurodivergent</span></a><br><a href="https://wandering.shop/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a>/ <a href="https://wandering.shop/tags/Disabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Disabled</span></a><br>Over 50's<br><a href="https://wandering.shop/tags/BIPOC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BIPOC</span></a></p><p>REGIONS<br>US<br>Canada<br>UK/ Europe<br><a href="https://wandering.shop/tags/Australia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Australia</span></a> &amp; NZ<br>Asia-Pacific-Latinx </p><p>Anyone want a link?</p>
Bun (he/they)<p><a href="https://disabled.social/tags/MutualAidRequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAidRequest</span></a> for Lydia, an autistic trans woman who suffers from chronic EDS. She was already struggling to pay the bills, and now her rent is going up significantly. She needs help affording August rent. Please boost!</p><p>$0/400 (as of 7/21)</p><p>venmo and paypal are both: @lydiawilder0</p><p>Any amount helps! If you can only boost that is okay, you never know who may see this and be able to donate. 💖</p><p><a href="https://disabled.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://disabled.social/tags/DisabledMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledMutualAid</span></a> <a href="https://disabled.social/tags/DisabledAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledAid</span></a> <a href="https://disabled.social/tags/TransMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>TransMutualAid</span></a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a> <a href="https://disabled.social/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EDS</span></a></p>
Bun (he/they)<p><a href="https://disabled.social/tags/MutualAidRequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAidRequest</span></a> for Xander, who is trans, chronically ill, and unemployed but interviewing for jobs, and needs help paying for bills, food, and transportation.</p><p>$73/224 (updated 7/21)</p><p>Please boost!</p><p>Even $1 helps.</p><p>venmo: xan1120<br>cashapp: Xan1120</p><p><a href="https://disabled.social/tags/TransMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>TransMutualAid</span></a> <a href="https://disabled.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://disabled.social/tags/TransCrowdfund" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>TransCrowdfund</span></a> <a href="https://disabled.social/tags/Pride" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Pride</span></a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a> <a href="https://disabled.social/tags/DisabledAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledAid</span></a> <a href="https://disabled.social/tags/DisabledMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledMutualAid</span></a></p>
Bun (he/they)<p>Lydia is an autistic trans woman who suffers from chronic EDS. She was already struggling to pay the bills, and now her rent is going up significantly. She needs help affording August rent. Please boost!</p><p>$0/400 (as of 7/21)</p><p>venmo and paypal are both: @lydiawilder0</p><p>Any amount helps! If you can only boost that is okay, you never know who may see this and be able to donate. 💖</p><p><a href="https://disabled.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://disabled.social/tags/DisabledMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledMutualAid</span></a> <a href="https://disabled.social/tags/DisabledAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabledAid</span></a> <a href="https://disabled.social/tags/TransMutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>TransMutualAid</span></a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicallyIll</span></a> <a href="https://disabled.social/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EDS</span></a></p>
Rabbi Danya Ruttenberg<p>Connecting disabled jobseekers with accessible and remote jobs!! 👇👇👇 ‼️‼️‼️‼️ ♿️ ♾️ <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23disabledsky" target="_blank">#disabledsky</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23cripsky" target="_blank">#cripsky</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23chronicallyill" target="_blank">#chronicallyill</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23madsky" target="_blank">#madsky</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23neurodiversesky" target="_blank">#neurodiversesky</a> (Ha, they all sound like Russian patronyms)<br><br><a href="https://app.making-space.com/opportunities?utm_source=Instagram&amp;fbclid=PAQ0xDSwLahBtleHRuA2FlbQIxMQABp5yHrTS8l6F6OPbiXlfhtwisUBOR6V5QnzpvxU3fj53IFYk7xQsI1lId9ELZ_aem_gMQrWE_TPWPiENocafIVHg" rel="nofollow noopener" target="_blank">app.making-space.com/opportunities?...</a></p>

"The doctors are not OK"
mecfs.substack.com/p/the-docto

Blogpost arguing that doctors may not be willing to admit in a consultation they don't understand a patient's condition/symptoms/etc & instead not treat them well (e.g. gaslighting them) because of the way they themselves were trained

@chronicillness
@spoonies
#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Continued thread

Y'all helped get Xander $185 out of the previous $280 ask, which is amazing thank you!

But now with new bills coming due for Xander we are back to square one:

$56/280 (updated 7/10)

Xander is trans, chronically ill and recently unemployed, and needs help paying for upcoming bills, food, and transportation. Anything helps and is appreciated! If you can't donate go ahead and boost!

venmo: xan1120
cashapp: Xan1120