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#MSwarrior

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Rich Rubin

@floofpaldi I can’t remember if I gave you this antidote before. Apologies if I have. Many years ago I read a book by Michael J Fox where he describes all the choices he can make each day. There’s only one choice he can’t make, that he has Parkinson’s. I like to apply that to my MS as well. I can love my wife & kids, choose how to treat others, pick my clothes for the day, pick what I want to eat, how I want my stories to go, etc. Like MJF, I can’t choose my disease. #mswarrior

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Suswati Basu (巴苏) :verified:

I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

#rarediseaseadvocate#ChronicIllnessDisability#MSWarrior
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