Dice.camp

2 posts2 participants0 posts today

J.Today’s got me wondering when I’m going to feel ok again. Not even good, just reasonably ok enough to get back to a somewhat normal daily routine.As it stands I’m getting maybe three hours a day where I feel ok enough to do anything in a non-painstaking way. The rest of the time I’m either unable to do anything at all, or I’m doing something at a snail’s pace miserably, or I’m asleep/lying in bed. I have to be very careful and strategic about how and where I spend my energy. Most of it goes to my dog or to basic self-care, like eating.I’ve been struggling for a long time—most of my life— but this is at a whole new level. I guess on the ‘bright’ side I can say that I’m appreciating my previous norm, which was also limiting.… And I do appreciate too the clarity that this has given me in terms of showing me that I’m dealing with a physical problem that I’ve been looking at through a scope of internalized ableism, making myself believe I could do more if only I push. And then allowing myself to blame myself. Now there’s no question of pushing; I simply can’t.<a href="https://lgbtqia.space/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://lgbtqia.space/tags/actuallyautistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#actuallyautistic</a> <a href="https://lgbtqia.space/tags/nospoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#nospoons</a>

J.I’m still not feeling well. Although not AS bad. I’m doing the best I can to eat as much as I can but it’s still not been a lot. I am a pretty big eater a lot of the time and I’m not used to trying to get by on so little food.Today my aunt got me some soup in a bread bowl while she was out running errands and dropped it off for me. It was the only thing I could think of that didn’t sound disgusting. And I was able to eat it.But I’m still feeling like garbage. I’m wearing a heart monitor for the week to make sure that nothing is going on there. The only time it seems like anything is wrong with my heart is during episodes of very intense anxiety when it sometimes starts to beat hard and irregularly for a second.I’m in my bed with Wheezy and my teddy bears just trying to be gentle with myself. I had therapy for the first time in a couple weeks today and it made me feel a bit better, but it also took lot out of me and I don’t have much in me to spare right now.<a href="https://lgbtqia.space/tags/nospoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#nospoons</a>

WulfricOk. I woke up, had breakfast, and signed into work. I think that is a significant effort that deserves some recognition.<a href="https://beige.party/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> <a href="https://beige.party/tags/TooTiredForThisShit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TooTiredForThisShit</a>

GigaDweebessJust over here having a real one, man.<a href="https://social.vivaldi.net/tags/Autism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Autism</a> <a href="https://social.vivaldi.net/tags/Burnout" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Burnout</a> <a href="https://social.vivaldi.net/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> <a href="https://social.vivaldi.net/tags/actuallyautistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#actuallyautistic</a> <a href="https://social.vivaldi.net/tags/Holidays" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Holidays</a>

EdibleFuchsiaIt's the 14th November, Midlands, UK. It's 11 degrees C. There's been 1 frost so far this winter. I'm eating breakfast outside. The dunnock is singing: "What you doing about it?" The ivy has taken over the old play shed. The thrush hops through it. The long grass holds much dew. An oxeeye daisy flower stands still. The rowan berries are 80% gone. The traffic hums. It's the 14th of November, 11°C, the dunnock sings. <a href="https://social.coop/tags/ClimateDiary" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ClimateDiary</a> <a href="https://social.coop/tags/MerlinApp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MerlinApp</a> <a href="https://social.coop/tags/Alt4me" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Alt4me</a> <a href="https://social.coop/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> <a href="https://social.coop/tags/birds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#birds</a>Edit: added AltText

Pete🎸🎶🐍📽🎞☮🌍🙂😭<a href="https://social.coop/@ideogram" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@ideogram</a> <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> I'll tell you what's ironic: Alanis Morrisette had 10,000 spoons and was still depressed.<a href="https://mas.to/tags/spoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoons</a> <a href="https://mas.to/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a>

WonderdogArvo, Toots - so I didn’t do the legal paperwork today - instead having to work on household budget (for related reasons) and oh dear dog, I do not do maths well at the best of times. Have I ever mentioned that I came top of my school in 3 Unit English, and bottom of the school in Vege Maths? I stopped understanding maths in about 6th grade, and this was a source of conflict between me and Mum, who. - yep, was a maths and science teacher! And having almost worked out the budget - just a few more things to add in - the $%&^*! Internet provider has just announced their pricing is going up $5 a month - and this after dumping email services last year? If I had any spoons left I’d change, but right now, when it would mean organising a new modem/router and … nope. Guess I’m paying a loyalty tax for a little while. ARRRRRGGGGGGHHHH! But still… <a href="https://bne.social/tags/FixingMyLifeOneStepAtATime" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FixingMyLifeOneStepAtATime</a> <a href="https://bne.social/tags/AuADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AuADHD</a> <a href="https://bne.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://bne.social/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a>

FaintdreamsHave this go to 'I've no spoons' no knead bread recipe that can be ready in a few hoursIt just needs ingredients chucked into bowl, then left to prove (proof?), then chucked into baking pan and then baked on low heat.Was using cling film (plastic) wrap to cover bowl, and felt awful every time - but am now using an oversized shower-cap to cover bowl while proofing and why didn't I think of that sooner ?<a href="https://dice.camp/tags/baking" class="mention hashtag" rel="tag">#baking</a> <a href="https://dice.camp/tags/BackingHack" class="mention hashtag" rel="tag">#BackingHack</a> <a href="https://dice.camp/tags/NoSpoons" class="mention hashtag" rel="tag">#NoSpoons</a> <a href="https://dice.camp/tags/LackingSpoons" class="mention hashtag" rel="tag">#LackingSpoons</a>

KiwiRedTonight's <a href="https://mastodon.nz/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> dinner. <a href="https://mastodon.nz/tags/Food" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Food</a>

Captain ACABWhy the hell do I have to eat every damn day? It's too much work. <a href="https://kolektiva.social/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> <a href="https://kolektiva.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a>

B's knees 🌱🐛🎼When you have EDS, a fall is a gamble of what you'll injure. If you use your hands, your wrists could dislocate, or tear, and so on. Today I opted to tuck and roll. My speed was great, the trip spectacular, the decision was made, then a full thud and roll occurred. Pretty jarring tbh, but other than stiffness and some aches, I seem to be ok. 😆 Not even much bruising. 👀 I feel lucky, but glad I didn't try to catch myself like I usually do.<a href="https://mstdn.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://mstdn.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#eds</a> <a href="https://mstdn.social/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a>

Steven Saus [he/him]Of *course* the elderly couple in the ER waiting room who say "That cough sounds like COVID" are not wearing a mask. OF COURSE THEY ARE.<a href="https://faithcollapsing.com/tags/nospoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#nospoons</a>

Jenn A. MoralesToday, I woke up with no spoons • • • Only knives. <a href="https://indieauthors.social/tags/Neurodivergent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Neurodivergent</a> <a href="https://indieauthors.social/tags/AuthorLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AuthorLife</a> <a href="https://indieauthors.social/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> <a href="https://indieauthors.social/tags/Spoony" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoony</a>

TOkay… one last push, gotta find the spoons to get through today, and then tomorrow I can sleep all weekend if I want to…<a href="https://social.tabathawood.com/tags/SoTired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SoTired</a> <a href="https://social.tabathawood.com/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> <a href="https://social.tabathawood.com/tags/fatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fatigue</a>

FalselogicI may never be able to finish this poetry project (StarOops) but I can always buy myself a new notebook and/or pen! <a href="https://brontosin.space/tags/nospoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#nospoons</a>

Mx. Flora SporeGot up to cook some food and ended up distracted by cleaning something (yay thank you <a href="https://neurodifferent.me/tags/adhd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#adhd</a> /s) and now I have <a href="https://neurodifferent.me/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> left to cook anything and all the food I have to make requires effort.

Mx. Flora SporeGetting up and doing anything has been so difficult for me the last couple of days. Both physically and mentally. <a href="https://neurodifferent.me/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://neurodifferent.me/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a>

Audrea Cook 🔮Just had this convo with my hubby:Me: “FYI I’m in a terrible mood for no particular reason. If everyone and everything could fuck all the way off and neither talk to nor look at me until further notice, that’d be great. I am 100% out of <a href="https://hachyderm.io/tags/spoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoons</a>, and I just need to be alone.”Him, without batting an eye: “Can do. Let me know if you need anything. I got the Ps5 set up for you, and I’ll be upstairs.”Y’all, he’s a keeper.<a href="https://hachyderm.io/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://hachyderm.io/tags/noSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#noSpoons</a> <a href="https://hachyderm.io/tags/chronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicPain</a> <a href="https://hachyderm.io/tags/mentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mentalHealth</a> <a href="https://hachyderm.io/tags/meTime" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#meTime</a> <a href="https://hachyderm.io/tags/marriedLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#marriedLife</a>

Autistic Book Club<a href="https://mastodonapp.uk/@NortherlyRose" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@NortherlyRose</a> <a href="https://graz.social/@mandelbrot57" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mandelbrot57</a> <a href="https://neurodifferent.me/@looneybyron" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@looneybyron</a> <a href="https://mastodon.social/@BlinkPopShift" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@BlinkPopShift</a> <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@actuallyautistic</a> Absolutely! Then when people chirpily ask you what you’ve, ‘got planned for the weekend?’ I want to screech at them, ‘I have Nothing planned and I want it to stay that way!’ 😆<a href="https://mastodonapp.uk/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a> <a href="https://mastodonapp.uk/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a> <a href="https://mastodonapp.uk/tags/Hermit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Hermit</a> <a href="https://mastodonapp.uk/tags/Introvert" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Introvert</a>

TainaBeen putting off doing The Big Shop for the fam for weeks now.Looks like I cannot force myself to go get stressed and annoyed in a busy store with nobody wearing masks and everything costing an arm and a leg. Been building up my f's for the entire day and I sure would need some supplies but I just can't get there. Tired of being the only one masked, tired of crowds. Absolutely over the denial. I just hate shopping. <a href="https://mastodon.lol/tags/adhd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#adhd</a> <a href="https://mastodon.lol/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovidIsNotOver</a> <a href="https://mastodon.lol/tags/tired" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#tired</a> <a href="https://mastodon.lol/tags/NoSpoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NoSpoons</a>

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