Badass Britt :mastodon_lgbt:<p>How’s my day going? </p><p>My rheumatologist sent me a snarky message asking me if I’d started a speciality rheumatic drug that he had yet to prescribe. </p><p>I cried at my family doctor because I’m in agonizing joint pain because I’ve had zero treatment for my rheumatoid arthritis in 3 months. </p><p>Sometimes my ‘badass’ tank is empty. </p><p>So, Yeah, I’ll take virtual hugs and memes and cosy video game recommendations and general happy thoughts, please. Thanks a ton. 💜</p><p><a href="https://mstdn.games/tags/medical" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medical</span></a> <a href="https://mstdn.games/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a></p>
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#chronicillness
28 posts · 21 participants · 3 posts today
Broadwaybabyto<p>If the person in charge of health and human services stands up and calls diabetes an “exotic disease” and says he has never heard of lupus or crohn’s… he should immediately be fired for gross incompetence. </p><p>This is eugenics. RFK Jr is going after disabled people so the country doesn’t have to pay for them. </p><p>His insistence on repeatedly bringing up how many kids can serve in the military gives the game away.</p><p>health supremacy and fascism are a risk to everyone. They may start with the disabled, but they won’t stop with us.</p><p><a href="https://zeroes.ca/tags/uspoli" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>uspoli</span></a> <a href="https://zeroes.ca/tags/fascism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fascism</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a> <a href="https://zeroes.ca/tags/rfkjr" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rfkjr</span></a></p>
Kaz :verifiedagender: :floof_Teehee:Daily repost!!! I have to walk to school tomorrow with my 5 year old brother plus an appointment :neko_scream_sob: if anyone can spare any money for food that'd be awesome! :floof_Heart: thank you so much for everyone who's donated recently!!!<br><br><br>PAYPAL: <a href="https://paypal.me/LynxPunk?country.x=US&locale.x=en_US" rel="nofollow noopener noreferrer" target="_blank">https://paypal.me/LynxPunk?country.x=US&locale.x=en_US</a><br><br>CASHAPP: $LynxPunk (MY CASH APP HAS ISSUES WHERE IT WONT LET ME RECEIVE FUNDS SOMETIMES! ITS BEST FOR SMALL TRANSACTIONS!)<br><br>Hey! I've been using Cash App to send money and spend using the Cash App Card. Try it using my code and you’ll get $5. (This gets me $5, just sign up, enter my code and send someone $5 OR order a CashCard!<3) <br>6VKHH6P <br><a href="https://cash.app/app/6VKHH6P" rel="nofollow noopener noreferrer" target="_blank">https://cash.app/app/6VKHH6P</a><br><br><br><a class="hashtag" href="https://cooltrans.men/tag/emergency" rel="nofollow noopener noreferrer" target="_blank">#Emergency</a> <a class="hashtag" href="https://cooltrans.men/tag/emergencyfunds" rel="nofollow noopener noreferrer" target="_blank">#EmergencyFunds</a> <a class="hashtag" href="https://cooltrans.men/tag/emergencycrowdfund" rel="nofollow noopener noreferrer" target="_blank">#EmergencyCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/transcrowdfund" rel="nofollow noopener noreferrer" target="_blank">#TransCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/teencrowdfund" rel="nofollow noopener noreferrer" target="_blank">#TeenCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/chronicillnesscrowdfund" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnessCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/kickedout" rel="nofollow noopener noreferrer" target="_blank">#KickedOut</a> <a class="hashtag" href="https://cooltrans.men/tag/runaway" rel="nofollow noopener noreferrer" target="_blank">#Runaway</a> <a class="hashtag" href="https://cooltrans.men/tag/urgent" rel="nofollow noopener noreferrer" target="_blank">#Urgent</a> <a class="hashtag" href="https://cooltrans.men/tag/urgentcrowdfund" rel="nofollow noopener noreferrer" target="_blank">#UrgentCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/trans" rel="nofollow noopener noreferrer" target="_blank">#Trans</a> <a class="hashtag" href="https://cooltrans.men/tag/transgender" rel="nofollow noopener noreferrer" target="_blank">#Transgender</a> <a class="hashtag" href="https://cooltrans.men/tag/mutualaid" rel="nofollow noopener noreferrer" target="_blank">#MutualAid</a> <a class="hashtag" href="https://cooltrans.men/tag/financialaid" rel="nofollow noopener noreferrer" target="_blank">#FinancialAid</a> <a class="hashtag" href="https://cooltrans.men/tag/newyears" rel="nofollow noopener noreferrer" target="_blank">#NewYears</a> <a class="hashtag" href="https://cooltrans.men/tag/boost" rel="nofollow noopener noreferrer" target="_blank">#Boost</a> <a class="hashtag" href="https://cooltrans.men/tag/urgentfunds" rel="nofollow noopener noreferrer" target="_blank">#UrgentFunds</a> <a class="hashtag" href="https://cooltrans.men/tag/fundraiser" rel="nofollow noopener noreferrer" target="_blank">#Fundraiser</a> <a class="hashtag" href="https://cooltrans.men/tag/showupforwishes" rel="nofollow noopener noreferrer" target="_blank">#ShowUpForWishes</a> <a class="hashtag" href="https://cooltrans.men/tag/help" rel="nofollow noopener noreferrer" target="_blank">#Help</a> <a class="hashtag" href="https://cooltrans.men/tag/foodinsecurity" rel="nofollow noopener noreferrer" target="_blank">#FoodInsecurity</a> <a class="hashtag" href="https://cooltrans.men/tag/highschool" rel="nofollow noopener noreferrer" target="_blank">#HighSchool</a> <a class="hashtag" href="https://cooltrans.men/tag/minor" rel="nofollow noopener noreferrer" target="_blank">#Minor</a> <a class="hashtag" href="https://cooltrans.men/tag/catturday" rel="nofollow noopener noreferrer" target="_blank">#Catturday</a> <span class="h-card"><a class="u-url mention" href="https://a.gup.pe/u/mutualaid" rel="nofollow noopener noreferrer" target="_blank">@<span>mutualaid</span></a></span> <a class="hashtag" href="https://cooltrans.men/tag/paypal" rel="nofollow noopener noreferrer" target="_blank">#PayPal</a> <a class="hashtag" href="https://cooltrans.men/tag/cashapp" rel="nofollow noopener noreferrer" target="_blank">#CashApp</a> <a class="hashtag" href="https://cooltrans.men/tag/homelesscrowdfund" rel="nofollow noopener noreferrer" target="_blank">#HomelessCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/homeless" rel="nofollow noopener noreferrer" target="_blank">#Homeless</a> <a class="hashtag" href="https://cooltrans.men/tag/transgendercrowdfund" rel="nofollow noopener noreferrer" target="_blank">#TransGenderCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/agender" rel="nofollow noopener noreferrer" target="_blank">#Agender</a> <a class="hashtag" href="https://cooltrans.men/tag/medical" rel="nofollow noopener noreferrer" target="_blank">#Medical</a> <a class="hashtag" href="https://cooltrans.men/tag/student" rel="nofollow noopener noreferrer" target="_blank">#Student</a> <a class="hashtag" href="https://cooltrans.men/tag/ftm" rel="nofollow noopener noreferrer" target="_blank">#FTM</a> <a class="hashtag" href="https://cooltrans.men/tag/helpfolkslive2024" rel="nofollow noopener noreferrer" target="_blank">#HelpFolksLive2024</a> <a class="hashtag" href="https://cooltrans.men/tag/disabilitycrowdfund" rel="nofollow noopener noreferrer" target="_blank">#DisabilityCrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/bostsokay" rel="nofollow noopener noreferrer" target="_blank">#BostsOkay</a> <a class="hashtag" href="https://cooltrans.men/tag/chronicillness" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a class="hashtag" href="https://cooltrans.men/tag/helppeoplelive2024" rel="nofollow noopener noreferrer" target="_blank">#HelpPeopleLive2024</a> <a class="hashtag" href="https://cooltrans.men/tag/crowdfund" rel="nofollow noopener noreferrer" target="_blank">#CrowdFund</a> <a class="hashtag" href="https://cooltrans.men/tag/helppeoplelive2025" rel="nofollow noopener noreferrer" target="_blank">#HelpPeopleLive2025</a> <a class="hashtag" href="https://cooltrans.men/tag/helppeoplesurvive2025" rel="nofollow noopener noreferrer" target="_blank">#HelpPeopleSurvive2025</a> <a class="hashtag" href="https://cooltrans.men/tag/medicalemergency" rel="nofollow noopener noreferrer" target="_blank">#MedicalEmergency</a><span class=""><br><br>RE: <a href="https://cooltrans.men/objects/c853b616-fae8-4635-a7b6-7eb7170429d7" rel="nofollow noopener noreferrer" target="_blank">https://cooltrans.men/objects/c853b616-fae8-4635-a7b6-7eb7170429d7</a></span>
ahimsa<p>Using the Ryan White HIV/AIDS Program as a blueprint to help Long Covid patients</p><p><a href="https://www.healthaffairs.org/content/forefront/addressing-long-covid-quandary" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">healthaffairs.org/content/fore</span><span class="invisible">front/addressing-long-covid-quandary</span></a></p><p>"As the COVID-19 pandemic enters its fifth year, the number of individuals experiencing persistent and debilitating symptoms consistent with postacute sequalae of COVID-19 or Long COVID continues to impact more than 44 million Americans and impair their activity levels."</p><p>(many new ME/CFS cases have been triggered by COVID)</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p><a href="https://disabled.social/tags/Covid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid19</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovid</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a></p>
ahimsa<p>Here's the latest News in Brief (April 14 - 20), a weekly summary of ME/CFS and Long Covid news from the Science for ME forum:</p><p><a href="https://www.s4me.info/threads/news-in-brief-april-2025.43486/#post-603368" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">s4me.info/threads/news-in-brie</span><span class="invisible">f-april-2025.43486/#post-603368</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/Science4ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Science4ME</span></a></p>
Tom Kindlon<p>Psychology Today: “I'm the Mom, But No One Listened to Me”</p><p><a href="https://www.psychologytoday.com/us/blog/risking-it/202501/im-the-mom-but-no-one-listened-to-me" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">psychologytoday.com/us/blog/ri</span><span class="invisible">sking-it/202501/im-the-mom-but-no-one-listened-to-me</span></a></p><p>Becky Diamond describes repeated experiences of teachers & clinicians not believing her child was sick, including with Long Covid.</p><p><a href="https://disabled.social/tags/LCKid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LCKid</span></a> <a href="https://disabled.social/tags/LongCovidKids" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidKids</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <br><a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidBrain</span></a></p>
Sini Tuulia<p>You know how in fiction and myth you can curse someone with the knowledge of how they will die, just not the when?</p><p>Well. It's a bit wild and interesting to me that for me, I got given that information at 25, with my diagnosis. Medication but no cure, and if everything goes perfectly, I stick to the routine, and the medication works and keeps on working, and nothing else kills me first... It's going to kill me a lot lot later as opposed to a handful to a dozen years, nobody knows for sure. But it is going to kill me.</p><p><a href="https://eldritch.cafe/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
Irina<p><a href="https://myalgicencephalomyelitiscfstom.tumblr.com/post/780169327140880384/unusual-but-sympathetic-paper-language-matters" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">myalgicencephalomyelitiscfstom</span><span class="invisible">.tumblr.com/post/780169327140880384/unusual-but-sympathetic-paper-language-matters</span></a> That table is awesome. <a href="https://wandering.shop/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://wandering.shop/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> <a href="https://wandering.shop/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
Acey<p>Hey everyone, I am alive and well, for the most part. My new job is a lot on me physically and mentally. I did save up enough to see a dentist for a cleaning. I'm going to need to go for a follow up to get my wisdom teeth extracted. they'll remove the two that's surfaced, but there's one very crooked one that I'll need cut out as it's still under the gums. </p><p>Any who, that's one update. I'll post another update in this thread as a follow up!</p><p><a href="https://disabled.social/tags/Healthcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Healthcare</span></a> <a href="https://disabled.social/tags/Dental" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dental</span></a> <a href="https://disabled.social/tags/Autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Autistic</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
Broadwaybabyto<p>Disability is not a moral failing. It’s not a punishment. It’s not karma.</p><p>It’s part of the human experience. Our bodies are frail, and given enough time most people will experience disability. </p><p>The idea that we’re lazy, choosing not to “try hard” or want to be sick is a fallacy born out of ableism.</p><p><a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityrights</span></a></p>
ImmedicableME<p>“Pull yourself up by your medical bootstraps you lazy bitches. Did you not know that you could just take green coffee bean extract and click your heels three times, because apparently the power to get well was there all the time?! Have you just tried not being sick? One, because you are way too expensive and are eating into my billionaire pals' profits, and two, we might have a draft for the poors!</p><p>…It is ‘ableism disguised as patriotism.’”</p><p><a href="https://mastodon.online/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disability</span></a> <a href="https://mastodon.online/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> </p><p><a href="https://vajenda.substack.com/p/oz-the-cruel-and-powerful-takes-the" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">vajenda.substack.com/p/oz-the-</span><span class="invisible">cruel-and-powerful-takes-the</span></a></p>
Broadwaybabyto<p>“When you’re chronically ill, you become incredibly skilled at hiding the pain. You learn to deliver a convincing “I’m fine” and smile through things that would make a non-disabled person crumble to the floor.</p><p>You learn to push your body and your mind way past any reasonable limits.”</p><p><a href="https://www.disabledginger.com/p/why-are-chronically-ill-people-forced" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/why-are-c</span><span class="invisible">hronically-ill-people-forced</span></a></p><p><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/disabilityjustice" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityjustice</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a></p>
Broadwaybabyto<p>If you want to fight fascism, ableism and eugenics while also protecting your health… the best thing you can do is wear a well fitted mask like an N95</p><p>They’re excellent at stopping the spread of Covid & other airborne diseases</p><p>Unsure how to choose one? Want to learn about mask blocs & fit testing? </p><p>I wrote all about respirators in the article below:</p><p><a href="https://www.disabledginger.com/p/were-witnessing-the-fall-of-public" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/were-witn</span><span class="invisible">essing-the-fall-of-public</span></a></p><p><a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearamask</span></a> <a href="https://zeroes.ca/tags/n95" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>n95</span></a> <a href="https://zeroes.ca/tags/uspoli" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>uspoli</span></a> <a href="https://zeroes.ca/tags/fascism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fascism</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a></p>
Tom Kindlon<p>Blogpost giving some tips on how to maximise the usefulness of appointments with doctors.</p><p><a href="https://www.carermentor.com/p/how-to-close-patient-doctor-disconnects" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">carermentor.com/p/how-to-close</span><span class="invisible">-patient-doctor-disconnects</span></a></p><p><a href="https://disabled.social/tags/DoctorPatientRelationship" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DoctorPatientRelationship</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span><br><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <br><a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chroniclife</span></a> <br><a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <br><a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonielife</span></a> <br><a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiddenillness</span></a> <br><a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>invisibleillness</span></a> <br><a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllnesses</span></a> <br><a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonies</span></a><br><a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spoonie</span></a><br><a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIll</span></a></p>
genXcrone (she/her)<p>[Oz: First, we’re going to reduce chronic disease. How do you do that? 70% of the health care expenditures of this country are driven by chronic disease. And it is your patriotic duty. I’ll say it again. The patriotic duty of all Americans to take care of themselves. Because it’s important for serving the military. But it’s also important because healthy people don’t consume health care resources.]</p><p>Chronically ill people are un-patriotic.<br>Chronically ill people are un-American.<br>Chronically ill people are anti-American.</p><p>Do you see this? Do you see how this started in the MAHA EO and continues here? </p><p>Do you know why I use the phrase "useless eaters?" Because Nazi doctors described people like me as “useless eaters,” or having “lives unworthy of living” or being “burdens upon themselves and the nation’s resources.” And then they killed them.</p><p>Go read what Dr. Oz said again. </p><p><a href="https://fandom.garden/tags/USPoli" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>USPoli</span></a> <a href="https://fandom.garden/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disability</span></a> <a href="https://fandom.garden/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
🍄Inoculating the Odd in AuDHD<p><span class="h-card" translate="no"><a href="https://blob.love/@nora" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>nora</span></a></span> I resonate a lot with these thoughts. You might be interested in a pain therapy or somatic therapy program. For example, I listened to some interviews with Rachel Zoffness about the book she wrote to help people work with their therapists on this</p><p><a href="https://www.zoffness.com//books" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">zoffness.com//books</span><span class="invisible"></span></a></p><p>There's also a bunch of resources here <a href="https://www.zoffness.com//resources" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">zoffness.com//resources</span><span class="invisible"></span></a></p><p><a href="https://post.lurk.org/tags/pain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pain</span></a> <a href="https://post.lurk.org/tags/somatic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>somatic</span></a> <a href="https://post.lurk.org/tags/SomaticTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SomaticTherapy</span></a> <a href="https://post.lurk.org/tags/chronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicIllness</span></a> <a href="https://post.lurk.org/tags/painTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>painTherapy</span></a></p>
Broadwaybabyto<p>Excellent article by <span class="h-card" translate="no"><a href="https://zeroes.ca/@nicktsergas" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>nicktsergas</span></a></span> about Covid and immunity debt. He interviews many doctors and leading experts to explore whether repeat Covid infections are destroying our immune system.</p><p>We must keep reminding people that sarscov2 is a novel virus. It’s only been 5.5 years which is nothing in the lifespan of a brand new disease. We can’t possibly know its true long term implications, and we must have the humility to accept what we don’t know. </p><p>The rush “back to normal” and insistence that Covid is “mild” serves the ruling elite. It was shoved down our throat to keep end stage capitalism afloat, not because it was actually mild or over. </p><p>What can you do? Wear a mask. Ideally an N95 or better. Clean and ventilate the air. Donate and support local mask blocs. Stay home when you’re sick. Refuse to accept the narrative that anyone is expendable:</p><p><a href="https://www.canadianaffairs.news/2025/04/06/is-covid-quietly-sabotaging-our-immune-systems/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">canadianaffairs.news/2025/04/0</span><span class="invisible">6/is-covid-quietly-sabotaging-our-immune-systems/</span></a></p><p><a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearamask</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> <a href="https://zeroes.ca/tags/cleanair" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cleanair</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a></p>
Dipole<p>If you're asking someone to do stuff for you, don't weld the tasks together</p><p>Don't say "can you [do task 1], and while you're there, also [do task 2]". When you do that, you are increasing the barrier to starting task 1 -- I'm essentially not *allowed* to start task 1 unless I have the resources to do both in quick succession. If I only do task 1 and take a break or fulfill another obligation, I expect you to be upset about task 2 not being done when you think it should've. I expect you to think I disregarded your instructions.</p><p>It might seem convenient to you to do them together, but that's not necessarily true for others. If someone struggles to find the time or energy to do things for you, it can easily be an excessive burden.</p><p>I feel like everyone has heard "break big problems into smaller ones" and understands the value of that. So don't deprive your friends and family from being able to do that.</p><p><a href="https://yiff.life/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://yiff.life/tags/actuallyautistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>actuallyautistic</span></a></p>
JADe (he, him)<p><a href="https://youtube.com/shorts/mi7cS5z2cJY?feature=shared" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">youtube.com/shorts/mi7cS5z2cJY</span><span class="invisible">?feature=shared</span></a></p><p>ENG: Observational study on medical <a href="https://mastodon.cr/tags/cannabis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cannabis</span></a> use for 300 people over 50 proves medical <a href="https://mastodon.cr/tags/weed" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>weed</span></a> effectiveness. Patients favor high CBD low THC oral dosing ( balanced 1:1), to reduce arthritic/chronic pain and help sleep without having to chain smoke/vape. If CBD dominantes there is almost no psychotropic effect. </p><p>ESP: Ciencia moderna confirma que <a href="https://mastodon.cr/tags/marijuana" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>marijuana</span></a> medicinal alivia dolor crónico, artrítis y sueño. Estudio con 300 personas de más de 50 años revela que pacientes prefieren gotas o comestibles altos en CBD y bajos en THC. Extracto 1:1 de flor resulta aún más efectivo y evita tener que fumar/vapear para sostener efectos analgésicos/ansiolíticos. De dominar el CBD el efecto psicotropico es nulo o mínimo. </p><p><a href="https://mastodon.cr/tags/memercredi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>memercredi</span></a> <a href="https://mastodon.cr/tags/viernesdememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>viernesdememes</span></a> <a href="https://mastodon.cr/tags/humour" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>humour</span></a> <a href="https://mastodon.cr/tags/funny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>funny</span></a> <a href="https://mastodon.cr/tags/humor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>humor</span></a> <a href="https://mastodon.cr/tags/salud" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>salud</span></a> <a href="https://mastodon.cr/tags/regenerativemedicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>regenerativemedicine</span></a> <a href="https://mastodon.cr/tags/humornegro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>humornegro</span></a><br><a href="https://mastodon.cr/tags/HumourNoir" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HumourNoir</span></a> <a href="https://mastodon.cr/tags/science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>science</span></a> <a href="https://mastodon.cr/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a><br><a href="https://mastodon.cr/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.cr/tags/ChronicPainMemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPainMemes</span></a><br><a href="https://mastodon.cr/tags/chronicpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicpain</span></a> <a href="https://mastodon.cr/tags/thc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>thc</span></a> <a href="https://mastodon.cr/tags/cbd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cbd</span></a> <a href="https://mastodon.cr/tags/cbn" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cbn</span></a> <a href="https://mastodon.cr/tags/thca" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>thca</span></a><br><a href="https://mastodon.cr/tags/sleep" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sleep</span></a> <a href="https://mastodon.cr/tags/arthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>arthritis</span></a> <a href="https://mastodon.cr/tags/cannabinoids" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cannabinoids</span></a><br><a href="https://mastodon.cr/tags/cannabismedicinal" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cannabismedicinal</span></a> <a href="https://mastodon.cr/tags/cannabismedical" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cannabismedical</span></a> </p><p>ALT-TXT: Monochrome photo of old indigenous woman holding a huge joint between her swollen fingers. Text: SIGNS OF AGING: Swollen Joints</p>
Tom Kindlon<p>11/</p><p>From:<br>“There but not really involved: The meanings of loneliness for people with chronic illness”<br><a href="https://www.sciencedirect.com/science/article/pii/S0277953624000406" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">sciencedirect.com/science/arti</span><span class="invisible">cle/pii/S0277953624000406</span></a></p><p><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://disabled.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicallyill</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disability</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>fibromyalgia</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>pots</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>dysautonomia</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
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