#psoriaticArthritis

César PoseFor several years, since I was experiencing a severe mental health crisis, I have been diagnosed with several different diagnoses. Some of them raise questions for me, while others are very obvious to me in my daily life. One of the first was "Intermittent Explosive Disorder." After several instances of aggression, self-harm, and severe physical confrontations, I went to a psychiatric hospital emergency room for help. After several months of diagnostic interviews, nothing was clear, and various possibilities were speculated about, including Borderline Personality Disorder. One day, I urgently asked to be admitted for fear of ending up killing someone or taking my own life. After almost two years, I had a mixed diagnosis of "Bipolar Syndrome." Apparently, the episodes of explosive disorder were confused with manic episodes and perhaps "something else." The wrong medication (antidepressants) aggravated the bipolar syndrome, generating a permanent hypomanic state with unexplained outbursts of aggression. Things became clearer when I evaluated my post-traumatic stress disorder due to physical and psychological abuse in childhood and several extreme experiences at work and in dangerous situations, which I found myself entangled in due to my manic tendency to disdain danger. A diagnosis of high intellectual ability also came into play, resulting in a ton of tests I took for months. Then I abandoned therapy and moved far away with my current wife. I lived a fairly stable, albeit difficult, life. Until I met an autistic hacker online and began to identify with everything he was going through, and I began to research. Then, in 2018, my granddaughter was born, and in 2020 she was diagnosed with autism, along with my daughter. I then had no doubts, and in 2022 I received my diagnosis (I couldn't get it before because of the pandemic). Although the picture is much clearer, I still see areas and aspects where symptoms and traits from all those diagnoses intersect and blend together. They all have traits and symptoms in common, and it's almost impossible to tell which one is which. What is clear is that it is a double exceptionality (or triple, according to some), where Giftedness, Autism, and Bipolar Disorder are combined. It's not easy to juggle those three things and autoimmune diseases because often what improves one thing aggravates another, or medications like levothyroxine or corticosteroids have side effects that worsen autistic traits or mental symptoms. One of the things that can seriously deregulate me is excessive stimulation, whether sensory or internal mental. That is, the sounds, smells, and stimuli of the environment or my own thoughts, which sometimes feel like a herd of wild horses or a track full of Formula 1 cars. The accelerated thinking of hypomania, combined with excessive stimulation, can be a ticking time bomb in my brain. If I don't explode into an aggressive outburst or a meltdown, it will surely be an implosion, with a tremendous surge of antibodies and a general inflammatory autoimmune storm in which I have to battle digestive issues, insomnia, extreme tinnitus, joint pain throughout my body, and of course, depression and brain fog. A few days of very frugal and careful eating, much more meditation than usual, solitude, silence, and a bit of digital disconnection usually calm these storms. But honestly, I'd rather duel with ten police officers and come home with fingernail paint on my fingers, or at least die fighting, than have to go through autoimmune flares every time I lose control or become severely dysregulated. Living is quite unbearable sometimes. <a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@actuallyautistic</a> <a href="https://infosec.exchange/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#autism</a> <a href="https://infosec.exchange/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#autistic</a> <a href="https://infosec.exchange/tags/actuallyautistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#actuallyautistic</a> <a href="https://infosec.exchange/tags/bipolar" class="mention hashtag" rel="nofollow noopener" target="_blank">#bipolar</a> <a href="https://infosec.exchange/tags/bipolardisorder" class="mention hashtag" rel="nofollow noopener" target="_blank">#bipolardisorder</a> <a href="https://infosec.exchange/tags/IntermittentExplosiveDisorder" class="mention hashtag" rel="nofollow noopener" target="_blank">#IntermittentExplosiveDisorder</a> <a href="https://infosec.exchange/tags/impulsecontroldisorder" class="mention hashtag" rel="nofollow noopener" target="_blank">#impulsecontroldisorder</a> <a href="https://infosec.exchange/tags/neurodivergent" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurodivergent</a> <a href="https://infosec.exchange/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener" target="_blank">#neurodiversity</a> <a href="https://infosec.exchange/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#mentalhealth</a> <a href="https://infosec.exchange/tags/mentalillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#mentalillness</a> <a href="https://infosec.exchange/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://infosec.exchange/tags/autoimmunedisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunedisease</a> <a href="https://infosec.exchange/tags/hashimoto" class="mention hashtag" rel="nofollow noopener" target="_blank">#hashimoto</a> <a href="https://infosec.exchange/tags/thyroid" class="mention hashtag" rel="nofollow noopener" target="_blank">#thyroid</a> <a href="https://infosec.exchange/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

Tracey Thekla RolandelliI think I'll go to bed early oh crap I forgot to inject. <a href="https://beige.party/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

Eva the sewing historianI can't go to the football game because my <a href="https://pixelfed.social/discover/tags/psoriaticarthritis?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a> is being mean, but I _had_ planned to at least get up from the sofa. But Kenya has other plans. <a href="https://pixelfed.social/discover/tags/cats?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#cats</a>

Tracey Thekla RolandelliI had a nice afternoon plein air painting with an art friend. Just a couple of sketches, nothing mind blowing. I had three ducks that followed me and fell asleep in front of me. They were adorable. I didn’t stay close to them because of bird flu reasons (and I washed/disinfected my shoes before I stepped in the house) but I did take a video and picture. Having a little achey in the wrists from moving all the furniture. Minor but noticeable. <a href="https://beige.party/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

Eva the sewing historianOn my way to the water physio. I made the dress, from a thrifted double bed sheet, and vintage lace. All of it I think, from Mölndals secondhand, a cheap, and very good charity shop near where I live. My friend and neighbour Anna knit the shawl. I have some fake flowers around my braided bun, to look more spring like On the bus now, wishing the teenagers wouldn't smoke just before getting on the bus, it clogs up my wind pipes. <a href="https://pixelfed.social/discover/tags/physiotherapy?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#physiotherapy</a> <a href="https://pixelfed.social/discover/tags/psoriaticarthritis?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a> <a href="https://pixelfed.social/discover/tags/chronicpain?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#chronicpain</a> <a href="https://pixelfed.social/discover/tags/memadeclothes?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#memadeclothes</a> <a href="https://pixelfed.social/discover/tags/allergies?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#allergies</a>

TraceyThekla 🎨 RolandelliOH YEAH I just dragged out the living room furniture to the curb BY MYSELF, BABY....for an early morning pick up by the wonderful Recology of Sonoma/Marin. I would like to thank Humira for making this possible, and for Naproxen who will be helping until the morning lol!!! <a href="https://sfba.social/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

TraceyThekla 🎨 RolandelliI can’t figure out why sometimes the injector pen goes in without hardly feeling anything, and other times it’s like “oh crap” right from the get go. <a href="https://sfba.social/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

TraceyThekla 🎨 RolandelliMention of injecting meds and blood (not graphic)

TraceyThekla 🎨 RolandelliMedicine talk

TraceyThekla 🎨 RolandelliSure, let's have that topical allergic reaction start at 12:30 am, why not? <a href="https://sfba.social/tags/humira" class="mention hashtag" rel="nofollow noopener" target="_blank">#humira</a> <a href="https://sfba.social/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a> <a href="https://sfba.social/tags/benadryl" class="mention hashtag" rel="nofollow noopener" target="_blank">#benadryl</a> <a href="https://sfba.social/tags/wellatleastillsleep" class="mention hashtag" rel="nofollow noopener" target="_blank">#wellatleastillsleep</a> <a href="https://sfba.social/tags/annoying" class="mention hashtag" rel="nofollow noopener" target="_blank">#annoying</a>

TraceyThekla 🎨 RolandelliMention of medicine

TraceyThekla 🎨 RolandelliOh crap I forgot to inject. Today was a crappy day. I'll make Saturday my new day I guess. <a href="https://sfba.social/tags/oopsie" class="mention hashtag" rel="nofollow noopener" target="_blank">#oopsie</a> <a href="https://sfba.social/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

TraceyThekla 🎨 RolandelliThink I gotta go back on the metho. Oh well. I tried. <a href="https://sfba.social/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

TraceyThekla 🎨 RolandelliMention of medication

Boots Chantilly<a href="https://mastodon.online/@billyjoebowers" class="u-url mention" rel="nofollow noopener" target="_blank">@billyjoebowers</a> That’s my natural hair cut in a fauxhawk—I was so lucky to have inherited my bio mother’s hair. The drugs I used to take for <a href="https://mstdn.social/tags/PsoriaticArthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsoriaticArthritis</a> made a lot of it fall out, so I shaved my head. I’m on a different med now, so I may try to grow it back out—but I kinda like being bald. Especially in this heat! Wigs are fun, too—even tho all the wigs I own right now look like my natural hair, on a whim, I can have any color & style I want. So I’m on the fence. Ha.

TraceyThekla 🎨 RolandelliA mosquito got me yesterday while taking out the garbage cans. The one thing I have noticed while being on immuno suppressant meds, is the bites turn into welts. Not anything serious, not infected at all, but my body used to handle them differently. I haven't had a viral or bacterial thing since, I don't know, 2019 at the latest, (😷 masks work, people, when fitted properly!), so this one change is interesting. <a href="https://sfba.social/tags/autoimmunedisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunedisease</a> <a href="https://sfba.social/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a>

colorfiendThis is my first allergy season on super mega doses of immune suppressants. So I guess I get to pick from getting sores from using non-lotion tissues, and they'll eventually get infected, or I can get pimples from using lotion-y tissues. yay. Both hurt. <a href="https://mstdn.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#NEISvoid</a> <a href="https://mstdn.social/tags/Inflectra" class="mention hashtag" rel="nofollow noopener" target="_blank">#Inflectra</a> <a href="https://mstdn.social/tags/Methotrexate" class="mention hashtag" rel="nofollow noopener" target="_blank">#Methotrexate</a> <a href="https://mstdn.social/tags/PsoriaticArthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsoriaticArthritis</a> <a href="https://mstdn.social/tags/Pollen" class="mention hashtag" rel="nofollow noopener" target="_blank">#Pollen</a>

Boots ChantillyA mani recommendation!You guys know I have <a href="https://mstdn.social/tags/PsoriaticSpondylitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsoriaticSpondylitis</a> , which is basically <a href="https://mstdn.social/tags/PsoriaticArthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsoriaticArthritis</a> that affects my spine & SI joints. Outside of that, it rly jacks w/ a couple of organs (liver & lungs) & my nails. Oh, my poor nails. They're a MESS--brittle, thin, weak, & w/ ridges that constantly split & bleed. I used to wear acrylic nails, but they're just so unhealthy. Plus, they're expensive & require a 3 hr round trip to have them done every month. +

pixelbud 🧠Made a sticker set. 10% of all proceeds will go to auto-immune arthritis causes. Drawing while I still can. <a href="https://www.etsy.com/listing/1704219577/set-of-11-stickers-in-super-mario-theme" rel="nofollow noopener" translate="no" target="_blank">https://www.etsy.com/listing/1704219577/set-of-11-stickers-in-super-mario-theme</a> <a href="https://evenpace.social/tags/arthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#arthritis</a> <a href="https://evenpace.social/tags/psoriaticarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#psoriaticarthritis</a> <a href="https://evenpace.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://evenpace.social/tags/stickers" class="mention hashtag" rel="nofollow noopener" target="_blank">#stickers</a> <a href="https://evenpace.social/tags/art" class="mention hashtag" rel="nofollow noopener" target="_blank">#art</a> <a href="https://evenpace.social/tags/shopindie" class="mention hashtag" rel="nofollow noopener" target="_blank">#shopindie</a> <a href="https://evenpace.social/tags/etsyartists" class="mention hashtag" rel="nofollow noopener" target="_blank">#etsyartists</a>

colorfiendI HATE health"care" in the US. When I checked in for my infusion this afternoon, they asked me to prepay the $2800 bill.Me: Why?<a href="https://mstdn.social/tags/Kaiser" class="mention hashtag" rel="nofollow noopener" target="_blank">#Kaiser</a>: It's your first treatment of the new year. Your last was in late December.Me: Yeah, I know when I had my last infusion but why am I being asked to prepay for it? I've never been asked to prepay before and besides <a href="https://mstdn.social/tags/Pfizer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Pfizer</a> pays for it.K: Oh? Are you part of a trial? Why isn't that on your chart? 1/3<a href="https://mstdn.social/tags/NEISVoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#NEISVoid</a> <a href="https://mstdn.social/tags/PsoriaticArthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsoriaticArthritis</a> <a href="https://mstdn.social/tags/Inflectra" class="mention hashtag" rel="nofollow noopener" target="_blank">#Inflectra</a>

Recent searches

Search options

Administered by:

Server stats:

#PsoriaticArthritis